This may seem like an odd way of explaining it, but hopefully it will make sense by the end of the post. As the theme for ME Awareness Week, at least in some places, is the idea of understanding what it’s like to have ME I thought I’d do a post of how it feels like, or rather this post is sort of more how it felt like to start with, this feeling does sort of go away after a while but it still sometimes sneaks up on me again.
I’m not sure how much sense this post will actually make, my brain is rather fuzzy, and it’s definitely not the only aspect of my life with ME, I might do a post on something else later in the week as I did think of including more aspects but it got a bit long and like a wall of text, so this is just the parallel worlds, two lives kind of thoughts I’ve had. Also I will say before I start, these are just my experiences, obviously it won’t be the same for everyone, maybe no one else feels like this at all but I think at least some people might be able to agree with me or know what I mean with this post.
It’s weird, when I was first ill I wasn’t really sure what it was that was wrong, which is obviously a bit scary when suddenly you can’t do anything that you could before and lots of people thought it was either just me being over the top after being ill and not wanting to go back to school or that I wasn’t actually feeling as bad as I was. As I was so ill I didn’t really have the energy or concentration to think of much, the first few years are mainly a blur of staying in my room broken up with events that I went to that I was probably too ill to go to and I can’t really remember properly anyway like seeing bands live or school events.